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Formerly an English teacher at a university but now working as a medical translator Tomoko works closely with PWSA Japan to translate or talk in public to distribute necessary information. Her daughter with PWS passed away (infant death), but Tomoko is still an active member of the PWS community….
Find useful guides, research and information to help families manage PWS.
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome.