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…that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What…

…in 15,000 to 25,000 children are born with Prader-Willi syndrome. It affects all races and both sexes equally. Find out more about what causes PWS and how it affects a person living with it. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Caregivers Sharing international…

…appointments. The guides are available in four parts addressing four different age groups. We would encourage you to share these with friends and colleagues. Please visit our translations page to download professionally translated versions in Arabic, Mandarin, Spanish and Turkish. Adults with Prader-Willi syndrome Adolescents with Prader-Willi syndrome Children (age 3-12) with Prader-Willi syndrome Infants (age 0-3) with Prader-Willi syndrome < Back to Information for Medical Professionals International Community IPWSO was established so that PWS…

…Ronderos (Colombia) Parent   Zurab Abjandadze (Georgia) Parent   Esther Maina (Kenya) Professional   Sandra Costi (Argentina) Parent Gayatri Iyer (India), Professional Asia-Pacific conference, Brisbane, Australia, 2018 Augustina D’Cunte (Argentina), Professional Scholarship to the PPCB Conference, Munich, Germany, August 2018 Do Thuy Lan (Vietnam), Professional Scholarship to the PPCB Conference, Munich, Germany, August 2018 Maria Benedekova (Slovakia), Parent Registration to the PPCB Conference, Munich, Germany, August 2018 IPWSO Scholarships for travel to the 9th International…

News Follow the latest news from around the world and the international PWS family. Use our Media Guide for information about how to write and report about Prader-Willi syndrome. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to…

…be held at 9am and 5pm London, UK time and will include presentations from both professionals and parents, followed by Q&A and discussion. Topics include: Human rights / self-determination Friends, relationships and sexuality Family testimonials Care in the family / care in group homes The meeting is directed at parents and families, but anyone with an interest in PWS is welcome. There is no cost, but registration is required. Previous Family Meetings Managing challenging behaviour…

…PWS. Our Strategy 2024 to 2026 We have exciting plans for the future, find out more about our work and how we are collaborating with others to achieve our goals. View our previous Strategy 2020-2023 here. Our Constitution IPWSO is registered as a charity (non-profit) in England and Wales. Our constitution can be read here. < Back to About Us International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the…

…the siblings of people with PWS, the unique challenges they face, the rewards, and how best to support siblings within the family. The presentations from the meeting are shared below. Previous Family Meetings Managing challenging behaviour in PWS Read more on Siblings Make a donation ​We cannot provide these services without your support. Please consider making a donation. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians…