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…this project in collaboration with the PWS Malaysia Association. Pakistan: Aga Khan University Hospital, Karachi Sabeen Iqbal, mother of a 32-year-old woman with PWS, and Salman Kirmani, Geneticist and Paediatric Endocrinologist, will work together to deliver a conference in their home country of Pakistan. This in-person event, originally planned for 2022, was postponed due to COVID-19. Sabeen and Salman plan to deliver a conference to help educate healthcare professionals about the needs of people with…

…threading beads etc). Their IQ level generally falls in the just-below-normal level, but often shows “islands of competence”. Maths instruction needs to be conceptual and practical and often repeated many times before there is understanding. Once understanding has occurred however, the concepts generally remain. Like all children they thrive on praise. Teaching the skills of using a calculator, for instance, is often more useful than trying to teach the times-tables. Primary Schooling On the whole,…

…Services Manager, Resilience Healthcare, Ireland | Fred Nikolai, Chairman Prader-Willi Stichting, The Netherlands | Michelle Torbert, President, Friends of IPWSO (USA), USA Moderated by: Hubert Soyer, Psychologist, Germany 14:15 – 15:00 Questions and Answers: Your medical questions David M. Agarwal, MD, FSIR, Indiana University School of Medicine, USA | Susanne Blichfeldt, MD, The Danish Prader-Willi Association, IPWSO Clinical and Scientific Advisory Board (CSAB), Denmark | Janice Forster, MD, Developmental Neuropsychiatrist, Pittsburg Partnership, Pittsburgh, PA, USA…

…too. Most students do well with reading, writing, computer studies, with some doing exceptionally well with fine motor skills (jigsaw puzzles, knitting, clay-modelling etc). Ok, so they might not have a career in the specialist field you had set your heart on, but they will achieve at their own level of competence. Be proud of them, encourage them, provide practical support. PWS characteristics aren’t “bad behaviour” As your child grows older, so you will start…

…USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are delighted to be returning to the USA. If your association is interested in hosting a future conference do get in touch. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for…

…or daughter? Do you have a medical diagnosis for your son/daughter, and if so, do you know what subtype they have (deletion, maternal disomy, or mosaic imprinting) What help do you already receive? What help do you want? Is your son/daughter at school? What help do you need? Is your family supportive? What do you need to help them understand? Is your son/daughter in residential care, or at home? Does your son/daughter have a job?…

…IPWSO Caregivers’ ECHO® Videos IPWSO Mental Health ECHO® Videos The IPWSO Academy Peer Reviewed Articles Terms, privacy notices and disclaimers IPWSO is grateful to Pfizer Inc., for supporting the ECHO® programmes by way of an Independent Medical Education Grant. IPWSO is solely responsible for the content of the programmes and the selection of presenters, authors and moderators and/or faculty (“Faculty”). Pfizer Inc., does not direct or influence the content of the programmes and does not…

…help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes…

…information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally. Free Diagnosis If you suspect your patient has Prader-Willi syndrome, based on the clinical…