Summit Meetings
Connecting the international PWS community through dialogue and action.
IPWSO Summit Meetings provide an international online forum at which key issues of relevance to people with PWS and their families, and our international community, will be discussed. People living with PWS and their families, clinicians, researchers, professional caregivers, PWS association leaders, pharmaceutical company representatives, and others with a personal or professional interest in PWS are invited to participate.
Our meetings are open to all and we look forward to lively discussions among our speakers and audience.
Next meeting: Global Perspectives on Stigma: Understanding Intellectual Disability and PWS Across Cultures
Wednesday 12 November, 2025, 1pm London, UK time
Click here to convert to your local time. Meetings are 90 minutes.
This meeting will explore how intellectual disability, particularly in the context of PWS, is perceived and experienced across different countries. We will discuss cultural attitudes, societal stigma, and how these impact diagnosis, care, inclusion, and advocacy for people with PWS and their families worldwide.
Speakers will be announced soon.
Click the “RSVP” button below to let us know you plan on attending, and to add the event to your calendar.
IPWSO strives to make collaboration in our community as accessible as possible. If you would like to take part but feel you may experience difficulty with language or any other aspect of communicating with the group, we encourage the support of interpreters, family members or caregivers. Please let us know if you would like to plan any special arrangements and we’ll be delighted to support this.
Previous Summit Summaries
Make a donation
We cannot provide these services without your support. Please consider making a donation.
< Back to News & Events
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.