Family Meetings

Next meeting:

Starting good habits early – Information for young PWS families

Tuesday, 28 October, 2025, 2pm London, UK time on Zoom

Click here to see your local time for the meeting.

The Famcare Board of IPWSO presents online information sessions via ZOOM on topics relevant to families of people with PWS. As a community, we invite discussion, offer hope and support, and seek to empower families to manage challenges.

💬 About the meeting

Navigating a PWS diagnosis can feel overwhelming for young families. This session is designed to offer clear, compassionate, and expert guidance for those just beginning their journey. Whether you’re seeking medical insight, practical advice, or the comfort of connection with others who understand, this event is for you.

We’ll discuss essential early-life topics such as:

• What to expect in the early years
• Feeding, growth, and development in PWS
• Common medical challenges and how to manage them
• Building the right support system for your child and family

🎙️ Meet Our Expert Speakers

👩‍⚕️ Dr. Constanze Lämmer
Senior Physician, Department of Endocrinology and Diabetology, KJF Klinikum Josefinum, Augsburg, Germany

Dr. Lämmer brings over two decades of experience in pediatric endocrinology, nutrition, and rare disease management. A pioneer in PWS care in Germany, she established the award-winning Hildesheim Program, serving over 300 patients with PWS. She is now building the multidisciplinary Prader-Willi Centre at Josefinum in Augsburg, which already supports more than 200 patients from across the country.

Dr. Lämmer is a scientific advisor to the PWS Association Germany and IPWSO, and she is passionate about family-centered education. Her approach combines deep clinical expertise with empathy and dedication to improving the lives of PWS families worldwide.

🌎 Tünde Liplin
Parent, President, PWS Association Hungary, Trustee of IPWSO

Tünde Liplin is a mother of 2 children. Her firstborn child, a son, Levente who lives with PWS was born in 2011, and she has a daughter, Panna, who was born in 2015. Her professional background is as a financial analyst. After she graduated, Tünde worked hard to attain her role as lead Financial Analyst for 17 years in a multinational company. But as a mother who cares for a child with special needs, she decided to give up her business career and concentrate full time on her family and building a strong PWS organization in Hungary. She was involved, with 10 other families, in the creation of the Hungarian PWS Association in 2019. She is currently the president of the Association. Her work consists of arranging official affairs, writing applications, organizing and managing volunteer work, and also organizing different types of parent meetings and keeping in touch with medical organizations. Her personal objective is to create an information database in the Hungarian language, and her long term goal to establish the first Hungarian PWS residential home for adults.

🌎 Liane Motta
Parent, Former President & Advisor, PWS Association Brazil

Joining us from Brazil, Liane is a mother to a 10-year-old daughter with PWS. With a background in translation and editing, Liane has used her skills to connect and empower families across Brazil. Under her leadership, the Brazilian PWS Association grew to support more than 500 families. Liane offers heartfelt, first-hand insight into the everyday realities and long-term outlook for families raising children with PWS. She speaks both Portuguese and English and brings an international, parent-focused voice to this important conversation.

🌱 Why This Matters

For young families, early support is critical. Understanding the unique needs of children with PWS can reduce stress, prevent complications, and open the door to a thriving life. This event will not only provide trusted medical information, it will also give you the chance to hear from another parent who has walked this path.

You’re not alone. Join us to learn, ask questions, and find community.

The meeting is directed at parents and families, but anyone with an interest in PWS is welcome.

Click below to RSVP and add the meeting to your calendar.