Family Meetings
The Famcare Board of IPWSO presents online information sessions via ZOOM on topics relevant to families of people with PWS. As a community, we invite discussion, offer hope and support, and seek to empower families to manage challenges.
Supporting success at school: Planning for PWS throughout the school years
Wednesday 15 April, 2026
2pm UK time (London). Meetings are 90 minutes.
Click here to see your local time for the meeting.
Click RSVP below to add the meeting to your calendar and confirm your attendance.
Durante esta reunión en línea, habrá interpretación simultánea en español, para los participantes que prefieran este idioma.
Children with PWS face different challenges at different stages of their school life, and families often have questions about when to start school, which type of school is best, and how to ensure their child is properly supported.
This meeting will look at schooling across the school years, recognising that children with PWS vary widely in their abilities and that school systems and family circumstances differ around the world. We will hear from expert speakers with long experience in PWS education and research, as well as parents sharing real‑world examples from their own children’s school experiences.
The session will cover practical issues such as preparing schools with clear, written information about PWS as a lifelong condition, managing food security in school, setting realistic expectations, and responding to social and behavioural challenges that can emerge as children get older.
There will be time for questions, discussion, and learning from each other, giving participants the opportunity to share experiences and practical ideas across countries and settings.
You’re not alone. Join us to learn, ask questions, and find community.
The meeting is directed at parents and families, but anyone with an interest in PWS is welcome.
Speaker information coming soon.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.