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Family Meetings

Starting good habits early – Information for young PWS families

This meeting took place Tuesday, 28 October, 2025

👩‍⚕️ Dr. Constanze Lämmer
Senior Physician, Department of Endocrinology and Diabetology, KJF Klinikum Josefinum, Augsburg, Germany

Dr. Lämmer brings over two decades of experience in pediatric endocrinology, nutrition, and rare disease management. A pioneer in PWS care in Germany, she established the award-winning Hildesheim Program, serving over 300 patients with PWS. She is now building the multidisciplinary Prader-Willi Centre at Josefinum in Augsburg, which already supports more than 200 patients from across the country.

Dr. Lämmer is a scientific advisor to the PWS Association Germany and IPWSO, and she is passionate about family-centered education. Her approach combines deep clinical expertise with empathy and dedication to improving the lives of PWS families worldwide.

🌎 Tünde Liplin
Parent, President, PWS Association Hungary, Trustee of IPWSO

Tünde Liplin is a mother of 2 children. Her firstborn child, a son, Levente who lives with PWS was born in 2011, and she has a daughter, Panna, who was born in 2015. Her professional background is as a financial analyst. After she graduated, Tünde worked hard to attain her role as lead Financial Analyst for 17 years in a multinational company. But as a mother who cares for a child with special needs, she decided to give up her business career and concentrate full time on her family and building a strong PWS organization in Hungary. She was involved, with 10 other families, in the creation of the Hungarian PWS Association in 2019. She is currently the president of the Association. Her work consists of arranging official affairs, writing applications, organizing and managing volunteer work, and also organizing different types of parent meetings and keeping in touch with medical organizations. Her personal objective is to create an information database in the Hungarian language, and her long term goal to establish the first Hungarian PWS residential home for adults.

🌎 Liane Motta
Parent, Former President & Advisor, PWS Association Brazil

Liane lives in Brazil with her daughter with PWS who was born in 2014. With a background in journalism, translation, and book editing, Liane has used her skills to connect and empower families across Brazil. Under her leadership, the Brazilian PWS Association expanded to support over 500 families. Liane offers heartfelt, first-hand insight into the everyday realities and long-term outlook for families raising children with PWS. She speaks both Portuguese and English, bringing an international, parent-focused voice to this important conversation.

Want to know more about our Famcare board? View the slides from our popular presentation on Famcare given at the United in Hope: International conference 2025.

Further reading: Information for new parents

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What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.  

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