News
Follow the latest news from around the world and the international PWS family.
Use our Media Guide for information about how to write and report about Prader-Willi syndrome.
Do you want to organise a PWS event in your country?
Announcing a new round of funding for PWS Conference and Workshops for 2025! Thanks to the support of Friends of IPWSO (USA), the IPWSO Grants Committee is able to offer funding to individuals and groups who are interested in planning and hosting a PWS event to...
Interested in hosting our international PWS conference in 2028?
Since its first Conference in 1991, IPWSO Conferences have been held in 11 countries on 5 continents. Whatever the size of your country or PWS Association, if you would like to host the 2028 IPWSO Conference, we would love to hear from you. You can find out more about...
New funding for small PWS projects 2025
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
THE BEST JOB IN THE WORLD!
Things never stay the same, and that’s no different for IPWSO! Next year, we’ll see some of our Trustees complete their tenure of office and we’ll welcome new officers to the IPWSO Board. Thankfully, ex-officers never stray too far from our PWS community and remain...
New funding for small PWS projects 2024
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
Do you want to organise a PWS event in your country?
New round of funding for PWS Conference and Workshops to be announced soon! Thanks to the support of Friends of IPWSO (USA), the IPWSO Grants Committee is able to offer funding to individuals and groups who are interested in planning and hosting a PWS event to...
We are recruiting for a Fundraising and Communications Manager (UK based)
We are looking for a Fundraising and Communications Manager to join our team. Remote working (must be UK based) £31,000 per annum pro rata (£16,534) Part-time (20 hours per week) Contract (12 months) Closing date is 12 January 2024 at 23:30 (UK time) We’re looking for...
ASPAE 2024 Travel Fellowships
Opportunities to attend the fifteenth African Society of Paediatric and Adolescent Endocrinology Congress on 7 & 8 March 2024, Algiers, Algeria. In order to share knowledge about Prader-Willi syndrome (PWS) around the world, IPWSO is delighted to offer a limited...
Can you help more families access PWS support?
Please support our Advice Line Appeal Help us be there for people with PWS in parts of the world with little support. This month we’re raising funds to help people with PWS access our vital advice line. Your donations will provide essential life-saving advice for...
Meeting for Ukrainian Families
We are hosting a meeting about the key features and challenges of Prader-Willi syndrome for families from Ukraine on November 21st at 7 pm (EET, Ukraine time). The meeting will feature a presentation by Dr. Susanne Blichfeldt and will be fully translated into...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.