Membership
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Please see our Constitution for further details.
Our members are subscribed PWS associations with voting rights. To be eligible to join as a member you must have a constitution and be formally registered in your country. Members of the wider IPWSO Network are professional and/or parent contacts who are working with people with PWS but who have no formal association.
Why join IPWSO?
Global Voice
Together we have a strong, global voice to call for better care, support and awareness of PWS.
Support Network
Together we can support each other. Our network of members ranges from old, well established organisations to brand new ones! We can support and guide your development as an association and give you access to our expert networks.
Outreach
Together we can support people in countries where there is no association and where knowledge and access to care may be very limited.
Community
Together we can make the global PWS community aware of the many free services, including diagnostic testing, offered by IPWSO.
One Organisation
Together we are IPWSO. Have a say in how IPWSO is run at our General Assembly and get more involved in our events.
Membership fees
€50
PWS Associations with less than 50 members
€100
PWS Associations with 50-99 members
€200
PWS Associations with 100 – 299 members
€500
PWS Associations with 300 – 499 members
€1,000
PWS Associations with 500+ members
The IPWSO Network
In regions where there is no constituted PWS Association, a Professional Delegate and/or Parent Delegate may join the IPWSO Network directly. This entitles these delegates to receive information, support, and educational knowledge from IPWSO. Being part of our Network does not entitle voting at the General Assembly.
PWS Associations
Our members are subscribed associations with voting rights.
Click the link below for a full list of our current members and to find out more.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.