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Grants to Individuals

We are able to provide grants to support travel to conferences and funding for other items required to progress the knowledge of PWS in your country and support your association and experts to develop their skills and reach. We can also provide financial support and speakers if you are working to organise a conference or workshop.

Grants and funding are aimed at individuals who would not be able to attend an event otherwise and it is always a condition of the grant that the knowledge gained will be used to benefit the wider PWS community in your own country on your return from the event. In the past we have also been able to fund small projects and translations. Sign up to our newsletter so you will be notified of future funding schemes.
 
ASPAE 2025 – Travel Scholarship Awards – Closing 15 December 2024
IPWSO is pleased to offer a limited number of travel scholarships to medical professionals wishing to attend the 16th Congress of the African Society for Paediatric and Adolescent Endocrinology (ASPAE) to be held in Abidjan, Cote d’Ivoire on the 20th-21st February 2025.  Download the application form and guidance notes and submit by 15 December 2024. This Grant is made possible by the kind support of Friends of IPWSO (USA).

Travel Scholarship Awards – PWS PPC Berlin 2024

With the generous support of Friends of IPWSO (USA), IPWSO was delighted to award travel scholarships to the following individuals to enable their attendance at the 6th International PWS Professional Providers and Caregivers Conference held in Berlin in May 2024.
Saoirse Kavanagh, Student, (Ireland)
Maria Benedekova, PWS Association,  (Slovakia)
Bjorn Christensen, Professional,  (New Zealand)
Van Dinh Thi Thanh, Professional, (Vietnam)
Paula Arce Sanz, Professonal (Colombia)
Group of delegates

Recipients from previous years

2023
A generous grant from Friends of IPWSO (USA) enabled 4 delegates to be attend the African Society for Paediatric and Adolescent Endocrinology (ASPAE) 14th Congress, in Yaoundé, Cameroon, from 9 to 10 February 2023 
Sagna Yempabou (Burkino Faso)
Sandrine Laure Ngambon (Cameroon)
Naiza N Monono (Cameroon)
Ntsoli Gaelle (Cameroon)

 

2024
With the kind support of Friends of IPWSO (USA) 5 delegates were awarded IPWSO Scholarships to travel to the 15th Congress of the African Society for Paediatric and Adolescent Endocrinology in Algeries from 7-8 March 2024.

 

Elisabeth Oyenusi (Nigeria)
Hiwot Nida (Ethiopia)
Adele Chetcha Bodieu (Cameroon)
Phoebe Mawalma (Kenya)
Ritha Carole (Cameroon)
2019
A generous grant from Friends of IPWSO (USA) enabled 11 delegates to be awarded IPWSO Scholarships for travel to the 10th International Prader-Willi Syndrome Conference held in Havana, Cuba, 13-17 November 2019.

 

Juan Carlos Reyna (Mexico)
Professional

 

Jorge Estanislao La Serna Infantes (Peru)
Professional

 

Molelekeng Sethuntsa (South Africa)
Professional

 

Nikolinka Yordanova (Bulgaria)
Professional

 

Denitsa Dimitrova (Bulgaria)
Parent

 

Anil Choubey (India)
Parent

 

Mario Arnoldo Mendez (El Salvador)
Parent

 

Maria Elvira Garcia Ronderos (Colombia)
Parent

 

Zurab Abjandadze (Georgia)
Parent

 

Esther Maina (Kenya)
Professional

 

Sandra Costi (Argentina)

Parent

2022
With the kind support of Friends of IPWSO (USA) and support from PWSA Norway 11 delegates were awarded IPWSO Scholarships for travel to the 11th International Prader-Willi Syndrome Conference held in Limerick, Ireland, 6-10 July 2022.

 

Georgian Apostol (Romania)
Parent

 

Karin Clarke (South Africa)
Parent

 

Gabriela Erazo (Ecuador)
Parent

 

Nikolinka Yordanova (Bulgaria)
Professional

 

Jorge Estanislao La Serna Infantes (Peru)
Professional

 

Zsofia Gacs (Hungary)
Professional

 

Leticia Guida (Brazil)
Professional

 

Lauren Jenner (UK)
Student

 

Esther Mwangi Maina  (Kenya)
Professional

 

Walaa Mohamed (Egypt)
Parent

 

Rebeka Parkanyi (Hungary)

Student

2018
Gayatri Iyer (India), Professional
Asia-Pacific conference, Brisbane, Australia, 2018
Augustina D’Cunte (Argentina), Professional
Scholarship to the PPCB Conference, Munich, Germany, August 2018

Do Thuy Lan (Vietnam), Professional
Scholarship to the PPCB Conference, Munich, Germany, August 2018

Maria Benedekova (Slovakia), Parent
Registration to the PPCB Conference, Munich, Germany, August 2018
2016
IPWSO Scholarships for travel to the 9th International Prader-Willi Syndrome Conference held in Toronto, Canada, 2016.
Marta López (USA/Spain), Professional
Asmaa Chakkour (Morocco), Sibling
Fernando Briones (Spain), Parent
Simone Ito (Brazil), Professional
Neil Gumley (Australia), Professional Caregiver

Do you want to find out more?

If you have a particular project in mind or know of a conference you would love to attend get in touch with us and we can talk about how to take this forward. 

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.  

Free Diagnosis

If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.

Find support in my country

We have contacts in many countries and regions around the world.