Give in Memory
This is one of the most powerful ways to remember a person by knowing that your contribution will go towards helping others in countries where families are desperate for help, information and support. We are always incredibly touched by the generosity of those who wish to donate to us, and you should feel assured that your contribution will have a great impact for people with PWS around the world.
How you can make a difference in memory of a loved one
Funeral Collection
Inform people who will be attending, in advance how the collection will be used and that you are planning on donating to IPWSO. Collecting donations at a funeral or memorial event can help IPWSO make a great impact and contribution around the world.
Fundraise
If you are considering taking part in a sponsored event, whether that may be running a marathon or holding a bake sale, fundraising in memory is a wonderful way to celebrate the life of a loved one.
Make a donation
If you are planning to make a donation, and would like to do so in someone’s name, there is the option to do so on the donation form.
Also let us know if you wish to tell us their story for us to share with our community.
Share your story
Rita and Jasmine
Rita Barks was so proud of her granddaughter, Jasmine (born 2010 with Prader-Willi syndrome). She would have been so happy to know that donations collected in her name would be used to support IPWSO, as she recognised the excellent work that IPWSO does to promote PWS at an international level and to support families and carers impacted by PWS.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.