Respiratory issues
People with PWS may experience respiratory infections differently from the general population, meaning the usual signs of illness can be less obvious. Recognising the early symptoms and knowing when to seek medical attention is essential to ensure prompt treatment and reduce the risk of serious complications.
Respiratory health
This page provides practical resources to help families and carers recognise the signs of respiratory (chest and airway) infections in people with PWS. The guidance explains how symptoms may differ in PWS, highlights important warning signs, and outlines when urgent medical assessment is needed.
Available resource
- Respiratory (chest and airway) infections in PWS: Symptoms that parents and carers need to be aware of. This guide explains the symptoms of respiratory infections in children and adults with PWS, factors that can increase the severity of illness, and the red flags that require urgent medical attention.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
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Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Genetic Screening
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free genetic screening.
Find support in my country
We have contacts in many countries and regions around the world.