Friends of IPWSO (USA)
Friends of IPWSO (USA) was founded by a group of scientists and parents who recognised that many people who have Prader-Willi syndrome around the world do not have access to the resources and information needed to live successful lives.
About Us
We support IPWSO’s work through funding conferences, scholarships, translations, publications, and other needs that will improve the lives of those who have PWS and inform those who care for them whether family or professionals.
To make a donation to Friends of IPWSO
Gifts to Friends of IPWSO qualify for an income tax deduction to those who pay United States taxes (US EIN 82-2546968). Send a donation to the address below or visit the link to their website
Friends of IPWSO
6400 Craig Drive
Eden Prairie
MN 55436
USA
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.