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Research and Clinical Trials Update Meetings

Thursday 11 September 2025, 5pm London, UK time on Zoom

Across the globe, scientists and clinical researchers are working to develop effective treatments and interventions for PWS. As our understanding of this complex genetic condition continues to grow, clinical trials remain essential in transforming research into real-world solutions, helping evaluate the safety, efficacy, and potential impact of new therapies.

IPWSO’s 2025 Research and Clinical Trials Update Meeting will take place on Thursday, 11 September 2025 at 5:00 PM (London, UK time) via Zoom. Meetings are 90 minutes. 
📅 Click here to convert to your local time

This annual event brings together leading researchers, clinicians, and members of the global PWS community to share the latest developments in research and clinical trials. Attendees will hear directly from experts about ongoing studies, emerging treatments, and what the future holds for care and intervention in PWS.

Whether you’re a parent or caregiver, a person living with PWS, a healthcare professional, or a researcher, this session is an opportunity to stay informed, ask questions, and be part of the global conversation driving progress in PWS treatment.

Agenda:

Opening and Welcome – Nick Finer, IPWSO President

Presentations and Q&A:

               Palobiofarma: Santiago Figueroa Pérez (COO)

               Acadia Pharmaceuticals: Speaker TBC

               Aardvark Therapeutics: Tien Lee MD (CEO) and Manasi Jaiman MD (CMO)

               Soleno Therapeutics: Dairine Dempsey (SVP, Europe)

Discussion – all

Closing – Nick Finer, IPWSO President

Click the “RSVP” button below to let us know you plan on attending, and to add the event to your calendar.

Video presentations from previous meetings:

5 September 2024

7 September 2023

In accordance with our Policy and Code of Practice, IPWSO does not promote individual trials or the use of specific medications.

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IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.  

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