Research and Clinical Trials Update Meetings
Across the globe, scientists and clinical researchers are working to develop effective treatments and interventions for PWS. As our understanding of this complex genetic condition continues to grow, clinical trials remain essential in transforming research into real-world solutions, helping evaluate the safety, efficacy, and potential impact of new therapies.
IPWSO’s 2025 Research and Clinical Trials Update Meeting took place on Thursday, 11 September 2025. You can view the presentations below.
This annual event brings together leading researchers, clinicians, and members of the global PWS community to share the latest developments in research and clinical trials. Attendees will hear directly from experts about ongoing studies, emerging treatments, and what the future holds for care and intervention in PWS.
Whether you’re a parent or caregiver, a person living with PWS, a healthcare professional, or a researcher, this session is an opportunity to stay informed, ask questions, and be part of the global conversation driving progress in PWS treatment.
2025 Presentations:
Palobiofarma: Santiago Figueroa Pérez (COO)
Acadia Pharmaceuticals: Matthew Trifilo PhD (Senior Director, Medical Affairs)
Aardvark Therapeutics: Manasi Jaiman MD (CMO)
Soleno Therapeutics: Dairine Dempsey (SVP, Europe) (was not recorded)
The presentation by Soleno was exclusive to the live meeting and was not recorded. You can read the related publication “The burden of illness in Prader-Willi syndrome: a systematic literature review”, authored by the presenter, at this link.
In accordance with our Policy and Code of Practice, IPWSO does not promote individual trials or the use of specific medications.
Make a donation
We cannot provide these services without your support. Please consider making a donation.
< Back to News & Events
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.