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Caregivers’ Forum Newsletters

Summary notes and additional information and advice following each Forum meeting. 

Bonus Meeting. Wednesday, 25 June 2025 (as part of the United in Hope: 2025 International PWS Conference, Professional Providers Program)
Supporting individuals with PWS in care settings that use less restrictive approaches

Thanks to Lynsey Moorehouse, RNID, BNS, Regional Operations Manager at PWS Resilience Healthcare, Ireland, for facilitating our in-person discussion.

For those who weren’t able to attend the conference, we’re happy to provide a PDF of the presentation and summary notes of the discussion.

You can also view the Bonus Forum Newsletter which was sent out after the conference. 

Meeting 03. Thursday, 22 May 2025
Embracing Cultural Diversity in PWS Residential Care

Thanks to Lynsey Moorehouse, RNID, BNS, Regional Operations Manager at PWS Resilience Healthcare, Ireland, for presenting.

For those who weren’t able to join the meeting, we’re happy to provide summary notes.

You can also view the 3rd Forum Newsletter which was sent out following the meeting.

Meeting 02. Thursday, 23 January 2025
The Experience of Grief for Residents and Staff in a PWS Residential Setting

Thanks to Barbara (BJ) Goff, Ed.D, and  Larry Genstil, Ph.D, for leading on our topic.

For those who weren’t able to join the meeting, we’re happy to provide summary notes

You can also view the 2nd Forum Newsletter which was sent out following the meeting.

Meeting 01. Thursday, 26 September 2024

We were delighted to be joined by caregivers from across the globe at the first meeting of the IPWSO Caregivers’ Forum on 26 September 2024. Thanks to USA Caregiver Delegate Mark Lister for presenting, and to Latham Centers for supporting the Forum and all that we do for caregivers. 

For those who weren’t able to join the meeting, we’re happy to provide summary notes

You can also view the 1st Forum Newsletter which was sent out following the meeting.

Scholarships

Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants.

Future conferences

Has your Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are delighted to be returning to the USA.

If your association is interested in hosting a future conference do get in touch.

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IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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