Medical Alerts Booklet
The Medical Alerts booklet has been developed by PWSA | USA with contributions from members of IPWSO’s Clinical and Scientific Advisory Board and outlines the important considerations for routine or emergency treatment of a person with Prader-Willi syndrome. The booklet is aimed at physicians and it is recommended that families take this with them when attending medical appointments, hospital or any medical treatment. Earlier versions of this booklet have been translated by IPWSO into many languages.
Download in the following languages:
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.