Advice Service
IPWSO was started by parents and professionals working together to solve common issues affecting people with Prader-Willi syndrome around the world. We are here for parents, families, associations, caregivers and professionals, and we can answer your questions. Just ask.
Advice and support
If you are looking for further information and guidance about Prader-Willi syndrome or trying to get in contact with someone to help you in a particular country or region do let us know. We can put you in touch with our contacts around the world, direct you to useful information and answer many common questions.
Medical consultation
If you have a medical question please complete this form and our Clinical and Scientific Advisory Board will respond to you.
Please be aware that when you contact us about a specific problem concerning someone with Prader-Willi syndrome, our specialists have not seen this person professionally in clinic. Therefore, IPWSO can only give advice in general terms based on our knowledge about Prader-Willi syndrome. We do not have the authority to force anyone in your country to give any specific treatment(s) or support, but we can give our professional opinion about what we consider the best treatment strategies. Our goal is to support you as best as we can
Make a donation
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.