Our Vision and Strategy
We are working to achieve a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We do this by working together with families, professionals and researchers from around the world, helping to link people together and inspire them to share ideas and knowledge about how best to manage Prader-Willi syndrome. Find out more about our work by reading our current Strategy and our latest Annual Report.
Our Vision
A world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals.
Our Mission
To unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
Our Strategy 2024 to 2026
We have exciting plans for the future, find out more about our work and how we are collaborating with others to achieve our goals.
View our previous Strategy 2020-2023 here.
Our Constitution
IPWSO is registered as a charity (non-profit) in England and Wales. Our constitution can be read here.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.