PWS Information
Prader-Willi syndrome is rare and most people, including many physicians and caregivers as well as new parents and family members, are not familiar with this syndrome. We have produced a collection of guides and resources about Prader-Willi syndrome for families, medical professionals and other people involved in the care and support of people with Prader-Willi syndrome.
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What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. It affects all races and both sexes equally. Find out more about what causes PWS and how it affects a person living with it.
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Information for
Families
Find useful guides, research and information to help families manage PWS.
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Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
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Information for
Caregivers
Sharing international knowledge among professional service providers throughout the world.
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Translated Guides
IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles.
You are welcome to download and distribute these articles, but please quote IPWSO as the source.
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