Research and Clinical Trials Update Meetings
Around the world researchers and scientists are working to develop treatments for the challenges associated with Prader-Willi syndrome (PWS). Their work and our understanding of PWS advances by means of clinical trials, which allow potential new treatments and interventions to be tested for safety and efficacy.
The 2024 Research and Clinical Trials update took place on Thursday 5 September at 5pm London, UK time, on Zoom.
Our thanks to the presenters and to everyone who attended. The presentations are shared below.
The first IPWSO Research and Clinical Trials meeting took place on September 7, 2023. View the video presentations from this meeting here.
In accordance with our Policy and Code of Practice, IPWSO does not promote individual trials or the use of specific medications.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.