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Chartered Psychologist, Cambridge Intellectual and Developmental Disabilities Research Group Aspects of Prader-Willi Syndrome (PWS), especially cognition and behaviour and how this relates to the genetic abnormalities….

…of the First Tier Tribunal (Mental Health) for England and works at the University of Cambridge where she teaches and researches in the fields of medical law and medical ethics. She leads the Clinical Ethics and Law Theme at the School of Clinical Medicine and is an Associate of the Centre for Law, Medicine & Life Sciences in the Faculty of Law. Elizabeth is interested in ways to operationalise supported decision-making by people with disabilities….

…postdoctoral experience working in the UK on the molecular genetics of PWS. Upon returning home to Kenya, she found that there were no documented cases of confirmed PWS cases in Kenya or even in the greater East African region. To that end she decided to approach Kenyan pediatricians with a questionnaire on the diagnosis of a PWS baby and the management therein. Since then her work and contacts in the PWS community have further developed….

Parent, Philanthropist, fundraiser, and conference adviser Joan has served as an adviser and committee member of PWSA USA and IPWSO. Currently Joan is the Parent Representative from USA to IPWSO….