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…by IPWSO’s Famcare Board. Print Friendly < Back to Adult Life International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people…

…Get Involved International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge…

…problems in individuals with an underlying genetic disorder especially Prader-Willi syndrome. Brian Hughes Member of the Advisory Group on “Research on specialist services for people with PWS”. Brian Hughes is Professor of Psychology at the University of Galway, Ireland. He is a specialist in stress psychophysiology, health psychology, and research methods. He has conducted extensive research into the ways human cardiovascular responses habituate during repeated or sustained stress exposure, helping to explain how some people…

…growth spurt in puberty, for the development of secondary sexual characteristics, body fat/lean muscle composition, bone mineral density, and quality of life. In addition to the well-established hypothalamic dysfunction in PWS, recent studies have associated the hypogonadism with impaired function of the ovaries and testes. Therefore, the flaw may lie along the continuum from complete primary (ovaries/testes) hypogonadism to complete central (hypothalamus/pituitary) hypogonadism. In the majority of women with PWS menarche (first menstruation) is usually…

…Behaviour and Mental Health International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing…

…1993-2023. In particular, Figure 1 shows the comprehensive testing strategy to diagnose Prader-Willi syndrome and to establish the genetic mechanism. There are two routes to access Free Diagnosis depending on where you are located. Latin America Rest of the World (IPWSO) Supporting diagnosis in Latin America IPWSO is delighted that the Instituto Fernandes Figueira (IFF) in Rio de Janeiro is now offering free diagnostic testing for PWS to all families in Brazil and throughout Latin…