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Scott Arant

Jul 13, 2022

Trustee Scott lives in Dunwoody with his wife Deborah. They have three children Charlie, Jack and Ally (w/ PWS). Scott founded American Health Imaging (AHI) in 1998 and served as its CEO for 24 years before semi-retiring in 2022. In that time AHI became the largest provider of high-tech radiological imaging in the southeast while employing nearly 500 people. Scott serves as a Director on several healthcare-oriented boards: US Radiology Specialists, Foundation for Prader Willi…

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Feeling the heat in PWS!

Nov 22, 2022

We have a new guide from our Famcare Board which looks at how to support a person with PWS to manage their temperature. Some time ago our advice line was contacted by a person with PWS who asked how hot their bath should be. This was a good question. People with PWS do not have the same reaction to hot and cold as other people do, and so they often need support to help them…

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Lynn Garrick

Sep 27, 2020

…nurse and works as a program director for AME Community Services which is a residential provider for those living with PWS. In addition to her professional involvement with AME Community Services Inc., she has been a board member of the Minnesota Prader- Willi Syndrome Association for the past 15 years, serves as the medical and research coordinator for PWSA| USA and is on the board of trustees for IPWSO as well as chairing our PPCB….

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Mary K. Ziccardi

Oct 23, 2020

Regional Director REM Ohio, USA Mary K. Ziccardi is a Regional Director at Sevita Health in Cleveland, Ohio, where she has been employed for nearly thirty four years. She is responsible for the region of northern Ohio, where over 300 individuals are supported by 400 employees in a variety of residential, day program and transportation services. Mary K. initiated and developed the very first community home in Ohio that supports people with PWS in 1994 and…

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Jackie Gill

Nov 17, 2020

Parent of an adult daughter, Jackie is a past IPWSO Board member and has worked with PWSA UK for over 20 years, specialising in writing and producing information, including the UK PWS Journey, and website articles for parents, people with PWS and professional carers….

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PWS Associations

Sep 15, 2020

…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…

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Venue Information

Dec 14, 2023

…hosting a future conference do get in touch. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical…

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Prader–Willi syndrome and Hypogonadism

Sep 7, 2021

Urs Eiholzer from the Centre for Paediatric Endocrinology, Zurich and member of our Clinical and Scientific Advisory Board tells us more about the latest research into PWS and Hypogonadism: Although hypogonadism is prevalent in males and females with PWS, knowledge about this condition is limited and there are no clear guidelines for diagnosis and treatment. In particular, gonadal hormone substitution is a matter of debate due to concerns associated with the potentially induced aggressive behaviour,…

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IPWSO Delegates

Sep 15, 2020

…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…

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Quick links

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

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One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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young child in a yellow dinosaur jumper

What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. 

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