Donate

Sign up to our newsletter

Contact Us

Results for "Only The Most Popular 5V0-22.23 Test Preparation Can Make Many People Pass The VMware vSAN Specialist (v2) 🤢 Open { www.pdfvce.com } and search for 《 5V0-22.23 》 to download exam materials for free 🐲Exam 5V0-22.23 Preparation"

Norbert Hödebeck-Stuntebeck

Nov 17, 2020

…about the competence of people with Prader-Willi-Syndrome in change of perspective (empathy). Since 1996 he has been responsible for the development and differentiation of support for people with PWS of all ages and in different fields of living, working, school and training programs. His interest in research is focused on empathy (change of perspective) in PWS and the development and evaluation of training programs. Another field of interest is obesity in people with learning disabilities….

read more

Hubert Soyer

Oct 23, 2020

…Wagner Absberg is an institution for adult people with disabilities offering facilities for living and working. For 25 years the institution has offered a special treatment for people with Prader-Willi Syndrome. Since this time there is cooperation with the Zentrum für Neuropsychologie – Trier and the Catholic University of Eichstätt-Ingolstadt for research on the subject of Prader-Willi syndrome. IPWSO Board: Board member from June 2011 till November 2019. Professional Providers & Caregivers’ Advisory Board: Board…

read more

Managing challenging behaviour

Aug 25, 2023

…so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world….

read more

Adult Life

Oct 12, 2020

…clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides…

read more

Annual Reports

Sep 15, 2020

…Annual Report 2016 Annual Report 2015   < Back to About Us International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting…

read more

A Mother’s Experience: new report out

Oct 20, 2022

…of children with Prader-Willi syndrome around the world and made a number of recommendations based on the information she gathered. In particular, she noted the need for: Greater psychological support for mothers around the world, Increased accessibility to resources, Strengthening cultural sensitivity and regional support, especially in the Asian and African regions, Expanding research, specifically age-based Prader-Willi research on the link between the development of maladaptive behaviours with maternal stress. The report has been extremely…

read more

Svetlana Labun

Jul 13, 2022

Trustee Ph.D., adult education, Catholic University of Eichstätt-Ingolstadt, 2004. Studies of German and English at the Novosibirsk State Pedagogical University, 1995. Department Manager of special services for 73 people with Prader-Willi Syndrome at Regens Wagner Absberg from 2007 till 2021. Regens Wagner Absberg is an institution for adult people with disabilities offering facilities for living and working. For 20 years the institution has offered a special treatment for people with Prader-Willi Syndrome. Since this time…

read more

Adapting to life in lockdown

May 13, 2020

Karin writes about life with her daughter in South Africa in a post originally shared on the Prader-Willi Syndrome Support – South Africa facebook page and reproduced here with permission. People with Prader-Willi syndrome (PWS) have some quite unusual traits one of the main things that has been discussed on PWS forums and Facebook pages since global lockdown is the anxiety they feel when things are uncertain. I am sharing our experience of PWS during…

read more

Talking about PWS with health professionals in Africa

Mar 1, 2023

…the possibility of free genetic diagnosis offered by IPWSO, and on the essential need to restrict access to food and to encourage and support daily physical activities. I also highlighted the key role of endocrinologists and paediatricians to support and help families. From my discussions with professionals, I could see the difficulties they are facing, due to limited resources and cultural problems, but also the essential role of family solidarity. Obesity is an increasing problem…

read more

Quick links

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

Find out more
One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Find out more
young child in a yellow dinosaur jumper

What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. 

Find out more