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Greetings from Ireland, Green and Ancient Land of Saints and Scholars!

Mar 4, 2020

…the global PWS family in accordance with our conference theme, “We’re All in This Together”. We extend a warm invitation to the PWS community all over the world to come and join us to celebrate and share knowledge gained and progress made in our common quest to make the lives of people with Prader-Willi syndrome better. There will be a ‘Cead Mile Failte’ (a hundred thousand welcomes) for you whether you don’t even know where…

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Clinical and Scientific Abstract Form – PWS 2025

Jul 17, 2024

…the following formats only: a pdf version of your abstract and a docx version of your abstract. Save completed documents for uploading with the file name as follows: Last name, First Name of first author and brief title. File(Required) Drop files here or Select files Max. file size: 128 MB, Max. files: 4. Comments If you have any additional comments or queries, please note these below and we will respond shortly. Save and Continue Later…

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We are recruiting for a Fundraising and Communications Manager (UK based)

Dec 13, 2023

We are looking for a Fundraising and Communications Manager to join our team. Remote working (must be UK based) £31,000 per annum pro rata (£16,534) Part-time (20 hours per week) Contract (12 months) Closing date is 12 January 2024 at 23:30 (UK time) We’re looking for a talented and motivated Fundraising and Communications Manager who can effectively convey the life-changing impact of our work, motivate our community to donate and fundraise to support our work,…

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Conference 2025

Mar 6, 2024

…to learn about the latest advances in the PWS field. Please read the guidelines and view the sample abstract template before submitting your abstract. Authors will be notified of the outcome by 14 March 2025.     Professional Providers Conference (PPC) – Closing date: 5 November 2024 The Professional Providers Conference will feature oral presentations and poster sessions on topics essential to specialist professional care of Prader-Willi syndrome (PWS). This highly collaborative conference focuses on…

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New PWS resources available thanks to Global Genes

Oct 13, 2022

…page for all the translated guides. New translations in Arabic: Important medical facts about Prader-Willi syndrome Guides for Doctors: Infants (age 0-3) with Prader-Willi syndrome Guides for Doctors: Children (age 3-12) with Prader-Willi syndrome Guides for Doctors: Adolescents with Prader-Willi syndrome Guides for Doctors: Adults with Prader-Willi syndrome Promoting Positive Behaviour Diet and Nutrition The importance of planned, purposeful days Exercise for people with Prader-Willi syndrome New translations in Mandarin: 饮食和营养 Diet and Nutrition 有计划、有目的的饮食至关重要…

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Conference Posters

May 13, 2024

…in hosting a future conference do get in touch. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common…

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News

Sep 15, 2020

…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…

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Staff

Jan 10, 2023

…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…

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Famcare guides for families

Dec 2, 2022

Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS. A guide to rituals and obsessions A guide to the transitional years After the Diagnosis, Relief and Acceptance Basics of a healthy adult lifestyle Confabulation / story telling Coping with change Duty of care Exercise for people with PWS Health checklist I want the same Importance of planned, purposeful days Life plan Managing a…

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Quick links

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

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One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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young child in a yellow dinosaur jumper

What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. 

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