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…paid their 2022 subscription. If your delegate is unable to attend the Annual General Meeting, then you can nominate a proxy or your delegate can attend by Zoom. Register in advance for this meeting: https://us06web.zoom.us/meeting/register/tZIpf-GtrD8sG9EwG2WUPwS66QD7mjLurj2o After registering, you will receive a confirmation email containing information about joining the meeting. Please email Agnes Hoctor at office@ipwso.org with any questions, or to nominate your proxy.   Meeting papers: < Back to Conference 2022 International Community IPWSO was…

Ask a Professional Your question(s) will be sent to our specialists on the Clinical and Scientific Advisory Board (CSAB). We will send you an answer back as soon as possible, but please be patient since we receive many questions from countries around the world. Please be aware that when you contact us about a specific problem concerning someone with PWS, our specialists have not seen this person professionally in clinic. Therefore, IPWSO can only give…

…support of this programme. About Project ECHO® IPWSO Mental Health ECHO® Programme Past ECHO® Programmes IPWSO & Project ECHO® FAQs Video Presentations IPWSO Leadership ECHO® Videos IPWSO Health ECHO® Videos IPWSO SPW Latino América ECHO® Videos IPWSO Caregivers’ ECHO® Videos IPWSO Mental Health ECHO® Videos The IPWSO Academy Peer Reviewed Articles < Back to Project ECHO® International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information…

…risk of sunburn Skinpicking – something particularly ‘PW’ Use bandaids, aloe vera, soft gloves, keep nails short Keep hands busy! Praise often for healed skin Prevent infection Diabetes More often Type II which comes with overweight Can be inherited if in family Treatment: Medication, weight reduction and diet Once weight reduced, medication can be lowered or ceased Untreated is a great health risk: eyes, kidneys, heart Osteoporosis Seen in 90% after age 30 (USA) Seen…

…around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in…

…Advisers Clinical and Scientific Advisory Board Professional Providers and Caregivers Board Famcare Board < Back to Our People International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus…

…occur spasmodically. These include: routine cutting of finger nails eg weekly daily use of moisturiser for fingers, hands and arms: it is best if the moisturiser is applied by the person with PWS positive reinforcement for “healthy, good-looking skin” keeping hands occupied – using a “word-find” or puzzle book, computerised game use, object kneading – eg soft ball, worry beads, hand craft – such as knitting, crocheting, beading, unravelling woven blankets daily sensory stimulation of…