…IPWSO Caregivers’ ECHO® Videos IPWSO Mental Health ECHO® Videos The IPWSO Academy Peer Reviewed Articles Terms, privacy notices and disclaimers IPWSO is grateful to Pfizer Inc., for supporting the ECHO® programmes by way of an Independent Medical Education Grant. IPWSO is solely responsible for the content of the programmes and the selection of presenters, authors and moderators and/or faculty (“Faculty”). Pfizer Inc., does not direct or influence the content of the programmes and does not…
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Our sponsors
…latest research, guidance, and treatment options. IPWSO conferences attract delegates from across the world, including people with Prader-Willi syndrome, families, scientists, medical and allied health professionals, residential care providers and educators. Main sponsorship opportunities and benefits We have Platinum, Gold, Silver and Bronze levels of sponsorship available; our Platinum package is our premium level of sponsorship offering exclusive naming of 1 day of the Clinical and Scientific Programme. Contact us as conference@ipwso.org to discuss these…
7 September 2023 Meeting
…a donation. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information…
Our Blog
< Back to News & Events Our Blog Covering issues, stories and the latest news regarding Prader-Willi syndrome. Sorry, we couldn’t find any results. International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical…
About the IPWSO Academy
…time zones and in many languages. helping existing PWS groups thrive by creating a culture of collaboration. facilitating the exchange of best practice and sharing lessons learned. To register your interest email: academy@ipwso.org About Project ECHO® IPWSO Mental Health ECHO® Programme Past ECHO® Programmes IPWSO & Project ECHO® FAQs Video Presentations IPWSO Leadership ECHO® Videos IPWSO Health ECHO® Videos IPWSO SPW Latino América ECHO® Videos IPWSO Caregivers’ ECHO® Videos IPWSO Mental Health ECHO® Videos…
Our Structure
…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…
Travel Advice
…within Germany. You can plan your tram, metro and train journey to and from the hotel/airport or any other tourist destinations. https://www.vbb.de/en/vbb-travel-info/?Z=Flughafen%20BER&language=en_GB& From BER airport – Through Terminal 1&2, take the S Bann 9, to Adlershof, then tram 60 or 61 to Spindlersfeld. This journey should take about 40 minutes, and cost roughly 8 Euros each way. Traveling Via Hauptbahnhof (Berlin Central Station) Via Taxi The distance is about 12 miles, and the taxi…
Our History
…is held in Taipei, Taiwan. Dr Suzanne Cassidy (USA) becomes IPWSO President. 2007 The sixth IPWSO conference is held in Cluj-Napoca, Romania. 2004 The fifth IPWSO conference is held in Christchurch, New Zealand. Pam Eisen (USA) becomes President. 2001 The fourth IPWSO conference is held in Minnesota, USA. 1998 The third IPWSO conference is held in Lido de Jesolo, Italy. It is attended by 250 delegates from 24 countries. Following a competition between members an…
ASPAE 2024 Travel Fellowships
…applicants’ experience of supporting people with PWS; applicants’ plans to continue to support people with PWS after the workshop/conference concludes; importance of providing support in this country/region. The closing date for the receipt of applications is 17:00 (UK time) on 2 February 2024. The successful applicant/s will be chosen by the IPWSO Grant Committee whose decision will be final. Both successful and unsuccessful applicants will be informed by IPWSO in collaboration with ASPAE as early…
Quick links
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome.