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Motivating someone with PWS How many times have you thought “he/she is so lazy….” “they won’t do anything I tell them to do”, “they won’t do their exercise”, “I told him/her to tidy his room 1 hour ago and he/she hasn’t even started”, “ he/she is so slow to get ready”. Self-motivation is not easy for most people with PWS A simple way to remember some key tools to help motivate someone with PWS is…

…(104 – 113° Fahrenheit), for adults. If the water is above 45 -50° Celsius (104 – 122° Fahrenheit) for adults, there is a risk of burning the skin. The sores that develop can become infected, and these will heal slowily, especially if you are overweight. So, it is recommended to only bathe or shower in warm water, using the temperature guide above, for a maximum of 10 minutes. It’s the same with saunas. It is…

…too. Most students do well with reading, writing, computer studies, with some doing exceptionally well with fine motor skills (jigsaw puzzles, knitting, clay-modelling etc). Ok, so they might not have a career in the specialist field you had set your heart on, but they will achieve at their own level of competence. Be proud of them, encourage them, provide practical support. PWS characteristics aren’t “bad behaviour” As your child grows older, so you will start…

…threading beads etc). Their IQ level generally falls in the just-below-normal level, but often shows “islands of competence”. Maths instruction needs to be conceptual and practical and often repeated many times before there is understanding. Once understanding has occurred however, the concepts generally remain. Like all children they thrive on praise. Teaching the skills of using a calculator, for instance, is often more useful than trying to teach the times-tables. Primary Schooling On the whole,…

…or daughter? Do you have a medical diagnosis for your son/daughter, and if so, do you know what subtype they have (deletion, maternal disomy, or mosaic imprinting) What help do you already receive? What help do you want? Is your son/daughter at school? What help do you need? Is your family supportive? What do you need to help them understand? Is your son/daughter in residential care, or at home? Does your son/daughter have a job?…