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…one! There is at present no reason to believe that just having PWS makes you more susceptible to COVID-19. However, what may make people with PWS more at risk for catching COVID-19 is if they find it more difficult to keep to the social distancing rules or do not follow hand washing guidance. At this stage in the global pandemic we would urge people with PWS, families and other carers to all do their very…
…exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. PWSA | USA Medical Alerts Medical Alerts in your language Consensus Documents…
…was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout…
…& Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge…
A common question from the medical community as well as parents who do not have prior knowledge of a rare disorder such as Prader-Willi, is what are the symptoms? Prader-Willi syndrome is a genetic condition whose cause is quite complex, but symptoms are usually noticeable shortly after birth. As other disorders can have overlapping manifestations the diagnosis should be confirmed by genetic testing, which IPWSO can offer support for here, if not available in your…
…people living with PWS are wide-ranging there are no restrictions on the types of projects that would be considered for funding other than the expectation that projects will be of benefit to more than one family, are concerned with building the capacity of networks or individuals to support people with PWS or would involve activities that are expected to directly assist people with PWS and their families. IPWSO will follow up with funding recipients for…
…is extracted with permission from ‘Need to know nutrition for children with Prader Willi Syndrome’ by Professor Peter SW Davies, The Children’s Nutrition Research Centre, The University of Queensland and Helen d’Emden, Mater Health Services, Co-author Brigid Knight, Mater Health Services. Download the full document here. For more information on all of our advice and research regarding diet, nutrition and healthy eating please visit our Diet and Nutrition page < Back to Our Blogs…
…the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. PWSA | USA Medical Alerts Medical Alerts in your…
…CEO, will be moving on too. Marguerite has solidified IPWSO’s standing in the international community; her passion, dedication and commitment has enabled IPWSO to make huge strides and she’ll be leaving us with a strong vision and deeply embedded values that promote equality, global solidarity, collaboration, and evidence-based research. She will, no doubt, be sorely missed! Our job now is to find someone that can rise to the challenge of helping deliver IPWSO’s strategic plan…
Find useful guides, research and information to help families manage PWS.
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome.