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…PWS are automatically directed to attend “day programmes”, once they finish school, when they are more than capable of being employed. Some day programmes provide constructive activities for their clients, especially those that are focused on individual, one-on-one support. Many day programmes, however, involve cooking, visiting shopping centres, travel-training and money management and extra and inappropriate food consumption. Food access is difficult to manage for the staff of such programmes, which are not PWS-specific. The…

…them for having PWS. Their environment is key. Starvation Syndrome To understand the importance of this drive to eat, try to look at PWS as a ‘starvation’ syndrome (behaving as if you were starving) rather than an over-eating one. Because of the dysfunction in the hypothalamus, there is no on/off mechanism that tells the brain, “I’ve eaten enough”. What happens instead is that the brain (hypothalus) keeps telling the body, “you’re starving, you need food”,…

I Want the Same How do you answer your person with PWS, who asks why they can’t have “the same” or do “the same” as other people? The “same” includes many more things than just food. People with PWS want to travel independently as do other adolescents and adults. Once someone with PWS learns how to reach a destination they can usually repeat the journey alone, without getting lost and are, consequently, considered to be…