Sign up to our newsletter

Contact Us

  1. Home
  2.  » 
  3. News & Events
  4.  » 
  5. 11th IPWSO Conference 2022
  6.  » 
  7. Programme of events
  8.  » Professional Providers and Caregivers Programme

Professional Providers and Caregivers



This Conference will be of interest to professionals involved in the work of caring for children, young people, adults, and aging adults living with PWS.

Topics for discussion include:

  • An overview of PWS services in various countries across the globe;
  • Behaviour – causes and how to respond to unexpected and challenging behaviours;
  • Wellbeing – what does this mean to people living with PWS?
  • Independence and positive risk taking;
  • Restrictive practices and implications for the professional care of people living with PWS;
  • Social media – maximising the benefits and reducing risks;
  • Living options – technology, alternative housing, person-centred planning.

Come prepared to discuss your experiences, vision, successes, and challenges.

Members of the Professional Providers and Caregivers Conference Planning Committee:

Lynn Garrick, Laura Keane, Patrice Carroll, Larry Genstil, Neil Gumley,

Norbert Hödebeck-Stuntebeck, Damien Jones, Jackie Mallow, Hubert Soyer, Mary K. Ziccardi.

Professional Providers and Caregivers Programme

Download the Programme Overview (PDF)*.

Download the Professional Providers and Caregivers Booklet of Proceedings.

Speaker and Poster Presenters Guidelines

If you are displaying a poster or presenting an oral, refer to our guidance information here.


*Please note all times are in BST.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

PWSA | USA Medical Alerts

Medical Alerts in your language

Consensus Documents