Conference Programmes
Watch this space for more details of each programme; our Conference Planning Committee is excited to be bringing a wide range of topics for discussion and debate, ranging from the clinical and academic to the practical and fun. The Conference is truly a meeting of the global PWS community and the Conference Planning Committee sends you a warm Céad Míle Fáilte – a hundred thousand welcomes to Ireland!
Over the course of the week, this conference will present five outstanding programmes featuring internationally renowned speakers covering the latest research, guidance and treatment options. The programmes will appeal to:
- Clinicians and Scientists
- Professional Providers and Caregivers
- Parents
- SUAS (meaning UP in Irish!) – Stepping Up Adults Symposium
- Children with PWS
- Allied Health Professionals and Educators
A new development is our one-day Interdisciplinary Conference designed to support competency development and knowledge sharing amongst allied health professionals, nurses, clinical and educational psychologists, doctors, social workers, and teachers.
Keynote speakers for the Clinical and Scientific programme so far include:
Dr Elena G Bochukova, Senior Lecturer in Genomics at Barts & The London School of Medicine and Dentistry, will present on insights into Prader-Willi syndrome through investigation of the human hypothalamus.
Anthony Isles, Professor of Molecular and Behavioural Neuroscience, MRC Centre for Neuropsychiatric Genetics and Genomics, Cardiff University, will present on the use of mouse models to understand psychiatric illness in PWS.
Dr Freddy Jeanneteau, Institut de Génomique Fonctionnelle, Université de Montpellier, will present on PWS and a model for understanding the wiring of the social brain.
Dr Miguel Constancia, Institute of Metabolic Science and Department of Obstetrics and Gynaecology, University of Cambridge, will present on placental nutritional transfer, foetal growth and brain development and the implications for our understanding of PWS.
Keynote clinical speakers covering recent advances in clinical practice will be announced shortly.
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Meet the Conference Planning Committee Members
Amalia Balart
Parents
Programme Lead
Norbert-Hödebeck-Stuntebeck
Professional Providers and Caregivers Programme Lead
Gary Brennan
PWSAI Rep & SUAS Lead (Stepping Up Adults Symposium)
Marguerite Hughes
Chief Executive Officer
Prof. Tony Holland
Interdisciplinary Programme Lead
Nora McNairney
Project Manager
Professor Dan Driscoll
Clinical and Scientific Programme Lead
Emma Walsh-Tierney
PWSAI Rep, Childrens Programme Lead
Lynn Garrick
Adults with PWS Programme Lead
Dr Kate Woodcock
IPWSO Committee Member
Conference overview
Wednesday 6th July 2022
- Onsite registration opens
- Welcome reception – Barbeque at The Stables, University of Limerick – 18:30 – 20:00. The cost is included in your registration fee. Additional tickets are available at €35 per head.
Thursday 7th July 2022
- Clinical and Scientific programme – Day 1
- Professional Providers and Caregivers programme – Day 1
Friday 8th July 2022
- Clinical and Scientific programme – Day 2
- Professional Providers and Caregivers programme – Day 2
- Associations and new member event
- Gala Dinner
Saturday 9th July 2022
- Parents programme – Day 1
- SUAS Programme – Stepping Up Adults Symposium – Day 1
- Childrens Programme – Day 1
- Interdisciplinary programme
- Social Event
Sunday 10th July 2022
- Parents programme – Day 2
- SUAS – Stepping Up Adults Symposium – Day 2
- Childrens Programme – Day 2
- IPWSO General Assembly
Social Programme
Gala Dinner
A perfect backdrop to celebrate our gathering!
Friday 8th July
Venue: Castletroy Park Hotel
Time: 19:00 – Midnight
Price: Adult – €55.00 | Child – €25
Dress: Smart Casual
Céilí
An evening of traditional Irish music and dance
Saturday 9th July
Venue: The Stables, University of Limerick.
Time: 20:00 – Midnight
Price: €0.00: kindly sponsored by PWSAI
Dress: Casual – bring dancing shoes!!
Registration opens October 2021. Join our mailing list to receive updates.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.