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  5. 11th IPWSO Conference 2022
  6.  » IPWSO Sponsors IC 2022

With thanks to our sponsors, exhibitors and charitable contributors

Novo Nordisk 

For almost 100 years, Novo Nordisk has been translating the unmet medical needs of people living with a serious chronic disease into innovative medicines and delivery systems, such as insulin pens. Novo Nordisk’s treatments today are benefiting millions of people living with diabetes, obesity, and rare blood and endocrine diseases. Novo Nordisk prides itself on discovering and developing innovative biological medicines and making them accessible to patients throughout the world.

Platinum Sponsor

Clinical and Scientific Programme Day 1 Sponsor


Radius 

Radius Health is a global biopharmaceutical company focused on addressing unmet medical needs in the areas of bone health, neuroscience, and oncology. Our Neuroscience Group is centered around the clinical development of our investigational synthetic cannabidiol oral solution (RAD011), initially focused on the treatment of Prader-Willi syndrome. Our team works collaboratively and relentlessly to advance our therapies, all with the goal of improving the lives of patients, their families, and their caregivers.

 

Platinum Sponsor

Clinical and Scientific Programme Day 2 Sponsor

 


Friends of IPWSO 

Friends of IPWSO improves the lives of the global PWS community by funding IPWSO’s family support, educational and scientific networking activities. Friends of IPWSO is a United States non-profit committed to raising funds to help those who have Prader-Willi syndrome living throughout the world. Friends have generously provided funds to support travel fellowships for IPWSO’s 2022 Conference. If you would like to make a difference and help Friends of IPWSO raise much needed funds, donate here.

Travel Grant Sponsor

 


Foundation for Prader-Willi Research

The mission of the Foundation for Prader-Willi Research is to eliminate the challenges of PWS through the advancement of research and therapeutic development.  FPWR supports innovative PWS research around the globe and across the entire drug development pathway, and has developed critical research resources, such as the Global PWS Registry. FPWR is honored to be a sponsor of the IPWSO conference; we thank the scientific community for their outstanding work on behalf of those with PWS.

 

Welcome Reception Sponsor

& Coffee Break Sponsor of the Clinical and Scientific Programme


Resilience

Resilience supports over 300 service users and families in Ireland. It is fully Irish owned and operated and offers services under two divisions – Advanced Community Care & Social Care. In addition, Resilience offers services for people with Prader Willi Syndrome and caters for their unique needs in a new state-of-the-art specialist division, which has been designed in line with best practice guidelines, putting ‘Realising Potential’ at the heart of everything Resilience does.

Gold Sponsor


Saniona

Saniona, based in Copenhagen, Denmark and Boston MA, USA, is a biopharmaceutical company focused on discovering, developing, and delivering innovative treatments for rare disease patients around the world. The company’s lead product candidate, Tesomet, is in mid-stage clinical trials for the rare diseases Prader-Willi syndrome and hypothalamic obesity. Saniona also has a broad pipeline derived from its proprietary ion channel discovery platform.

 

Gold Sponsor

Programmes for Professionals


Soleno

Soleno Therapeutics is developing DCCR, a once daily tablet, to treat individuals with PWS. DCCR’s unique mode of action targets multiple areas in the body and has the potential to reduce hyperphagia and associated food seeking, increase satiety, decrease insulin and leptin resistance, reduce body fat, and improve several behaviors characteristic of PWS. We have completed a Phase 3 study and are working with regulatory authorities on paths to approvals.

Gold Sponsor

Programmes for Professionals


Prader-Willi Syndrome Association USA

Formed in 1975, Prader-Willi Syndrome Association | USA (PWSA | USA) unites individuals, parents, professionals, and others to enhance the quality of life of those affected by Prader-Willi syndrome (PWS). PWSA | USA empowers the PWS community through shared experiences, research, education, advocacy, and support.

Our purpose is to provide hope and help to individuals with PWS and their families every step of the way. We focus on – Family Support, Advocacy & Awareness and Research.  Some of the services we offer to families are:

  • New Diagnosis Packet
  • Parent Mentor
  • Family Support
  • School Support
  • 24-Hour Emergency Support Hotline
  • Medical Support
  • Grief Support
  • Medical Alerts Booklet
  • Biennial Convention

 

Gold Sponsor


OT4B

OT4B (OxyTocin for Babies) is a French start-up initiated and supported by the French Prader-Willi community, following promising academic research results. Our aim is to develop Oxytocin as the first early treatment for PWS to address oral and social skills deficiencies during the neonatal period, with a potential long-term impact on the disease trajectory. Further developments are also planned for older PWS patients. Maithé Tauber, world-renowned expert and coordinator of the national PWS reference center in Toulouse, is the driving force behind this innovative therapeutic approach.

Silver Sponsor

Programmes for Professionals


EPM

EPM is a pharmaceutical company dedicated to the development of innovative medicine based on cannabinoid acid derivatives, that do not exist in the plant. These unique synthetically produced molecules have a vast therapeutic potential to address unmet medical needs and improve patients’ health, mainly in the areas of metabolic disorders and inflammations.

EPM’s first drug that will reach the clinical stage is intended for the treatment of hyperphagia and its comorbidities in people with Prader-Willi syndrome.

Silver Sponsor

Programmes for Professionals


Aardvark Therapeutics

Aardvark Therapeutics is a clinical stage biopharmaceutical company developing small molecule therapeutics that activate innate homeostatic pathways to restore health. Our lead product, ARD-101, is first-in-class oral composition that targets bitter taste receptors (TAS2Rs) in the gut, leading to the secretion of several gut peptide hormones that regulate appetite, metabolism and inflammation. Working closely with the PWS community, one of the ongoing ARD-101 phase 2 trials is focusing on hyperphagia in individuals with PWS. 

Silver Sponsor

Programmes for Professionals


ConSynance Therapeutics

ConSynance is a clinical-stage biopharmaceutical company focusing on rare diseases in the central nervous system, particularly those related to hypothalamic dysfunction. Our lead asset is CSTI-500, an experimental small molecule and potential first-in-class triple monoamine reuptake inhibitor (TRI) for treating hyperphagia in PWS. We recently received US FDA approval to study CSTI-500 in PWS patients, which will mark the first clinical study involving this population. We are initiating the clinical trial in Q3 of 2022 in the US.

Bronze Sponsor

Coffee Break Sponsor – Day 1: Clinical and Scientific


PWS Association – Switzerland

 The Prader-Willi Syndrome Association Switzerland was founded in 1991 by a group of active parents. Key goal is to improve the lives of people with PWS by:

  • Providing information and counselling for affected families
  • Organising events to promote contact amongst the PWS community
  • Publishing magazines/literature with up-to-date information on PWS
  • Bringing together experts, doctors, carers, therapists and affected persons
  • Establishing suitable housing and work opportunities for people with PWS
  • Promoting cooperation with other national and international PWS organisations

 

Bronze Sponsor


PWS Care Ltd

PWS Care Ltd was opened by David Palmer and Teresa Hills in 2018. Both having worked with adults with Prader Willi syndrome since 1998. David’s nephew had the syndrome and Teresa has managed a number of PWS specific homes bringing a wealth of experience to the company.

We have one home catering for 7 persons with PWS and enquiries for services remains high. We look forward to possibly progressing our services in the future.

Bronze Sponsor


Gedeon Richter Plc

Gedeon Richter Plc. (www.gedeonrichter.com) headquartered in Budapest/Hungary, is a major pharmaceutical company in Central Eastern Europe, with an expanding direct presence in Western Europe, in China and in Latin America. The product portfolio of Richter covers many important therapeutic areas, including Women’s Healthcare, Central Nervous System and Cardiovascular areas. Having the largest R&D unit in Central Eastern Europe, Richter’s original research activity focuses on CNS disorder.

Bronze Sponsor

Programmes for Professionals


Landsforeningen For Prader-Willis Syndrom

The organisation is for everyone with PWS, their families, and professionals with an interest in PWS. The organisation is run by family members of those living with PWS, and was established in 1986.

Our main goals are:

  • To provide knowledge and guidance for people living with PWS and their families;
  • To raise awareness about PWS in kindergartens, schools, group homes, and in the health care system;
  • To spread knowledge to the government and authorities about PWS.

We are an active organisation that arranges family weekends in several places in Norway, vacation trips to Spain for teenagers and grown-ups, webinars, and seminars.

Bronze Sponsor


Prader-Willi Vlaanderen vzw

Prader-Willi Vlaanderen vzw, founded in 1987, has four important goals:

  1. Supporting parents by organizing informative contact days, family days to facilitate informal contacts, and organizing workshops (e.g., “Speaking with Support and Gestures”, relaxation therapies, and managing behavioural problems), as well as providing newsletters, newsflashes, and information leaflets;
  2. Making its voice heard amongst policy makers, healthcare institutions and university centres and close contact with other PWS organisations;
  3. Making the syndrome more known;
  4. Supporting scientific and medical research.

Bronze Sponsor


Pfizer Healthcare Ireland has donated a charitable contribution to support the Prader-Willi Syndrome Association of Ireland (PWSAI) host the International Prader-Willi Syndrome Organisation (IPWSO) Conference, taking place on 7-9 July in the University of Limerick. This contribution will support the professional programmes of this vital educational event which will be attended by HCPs and people with Prader-Willi Syndrome and their families.

Charitable Contributor


Find out more about sponsorship and exhibitor opportunities.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

PWSA | USA Medical Alerts

Medical Alerts in your language

Consensus Documents