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Online registrations – Closed 20 June

Welcome to the registration page for the 11th International Prader-Willi Syndrome Organisation Conference 2022

For late registration please contact our conference office on: conference@ipwso.org

Registration opens September 2021. Join our mailing list to receive updates.

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Overview

Let’s keep everyone safe during our Conference.

Whilst we are confident that by July 2022 this difficult period caused by COVID-19 will be well behind us, we want to do our utmost to keep everyone safe, and so, for your own safety and for the comfort and safety of others, we strongly recommend that you are vaccinated with the maximum number of doses available to you in your country.

We know that any decision regarding the COVID-19 vaccination will be a personal/family decision, however, we are reassured by opinion from our experts that people with PWS do very well after receiving the vaccination.

Before embarking on your trip please check out the Irish government guidance. We will be following this guidance and that of public health authorities and the University of Limerick and we will continue to monitor and review the situation, working in the best interests of all our delegates.

Thank you for your support to keep us all safe and well during IPWSO 2022!re  

Registration Information

Our International Conference runs from Thursday 7 July to Sunday 10 July and this section gives you important information about the programme options available to you and the terms and conditions. The basic offers and prices are detailed below.  To begin the registration process, scroll to the bottom of this page.

Thursday 7 & Friday 8 July

Clinical and Scientific:

€370 Standard 

Thursday 7 & Friday 8 July

Professional Providers and Caregivers:

€330 Standard

Saturday 9 July

 Interdisciplinary:

€110 Standard

Saturday 9 July & Sunday 10 July or combined with Thursday 7 & Friday 8 July

Parents Programme:

€230 Standard

Reduced rate for Parents attending as observers at either the Clinical and Scientific or the Professional Providers and Caregivers Conferences

€395 Standard

 

Saturday 9 & Sunday 10 July

SUAS – Stepping Up Adults Symposium or Children living with PWS:

€180 Standard 

Wednesday 6 July

 

Friday 8 July

Saturday 9 July

 

 

 

Welcome Reception: included in fees. Additional tickets €35.

Gala Dinner:  €55 (Adult) €25 (Child)

Traditional Irish Music and Dancing: €0. Kindly sponsored by PWSAI

Places are limited for these events – Book Early!

 

There are opportunities to combine events and options and prices are displayed when you choose your registration type. Discounted rates are available to students, and observer rates are available to parents attending the Parents Programme and wishing to attend the Clinical and Scientific or the Professional Providers and Caregivers Programmes.

Registration fees: include the Welcome Reception, mid-morning breaks, light lunches and afternoon breaks, unless otherwise specified.

The Programme and Abstract Booklet: the cost is included in your registration fee and is available to everyone online. However, if you prefer a paper copy, specifically for the Clinical and Scientific and Professional Providers and Caregivers Programmes, this can be pre-ordered when you register.

The online registration system – “Stripe”, this payment service takes personal details and credit or debit card information to process your registration fee.

Terms and Conditions: Please read and accept our Terms and Conditions before progressing to the registration process.  Please also note that by taking part in this Conference you grant the organisers full rights to use the images resulting from the photography/video filming and any reproductions or adaptions of the images for fundraising, publicity or other purposes in furtherance to the aims of IPWSO and PWSAI. This might include (but is not limited to), the right to use in our printed and online publicity, social media, press releases and funding applications. If you do not wish to be photographed please email conference@ipwso.org or make yourself known to an event organiser during the Conference.

 

Registration types

When selecting your registration type below please be aware of the following: –

  • All delegates: including speakers and facilitators must register.
  • For Students: A discounted rate is available for full-time college, medical and PhD students as well as fellows and researchers who wish to attend the Clinical and Scientific Programme or the Professional Providers and Caregivers Programme.
  • Parents: who are attending the Parents Programme may attend either the Clinical and Scientific Programme or the Professional Providers and Caregivers Programme as “Observers”, at a discounted rate. 
  • Individuals registering themselves for the Parents Programme and also a person living with PWS
    The process allows you to register yourself and also additional people. Include gala dinner and social event tickets for any additional people, including any adults or children that you are also registering for their respective Programmes,  when you register as a Parent attending the Parents Programme.
  • Adults living with PWS : SUAS – Stepping Up Adults Symposium
    This Programme is for people aged 18 and over living with PWS. Places are allocated on a first-come, first served basis. Each participant must be accompanied by a responsible person/carer whose place will be free of charge; if you do not know the carer’s details at this point, just insert “to be advised”.  A responsible person/carer must remain with the person in their charge for the entire Programme.  Once you have registered a separate form will be emailed to you to collect some further information.
  • Children living with PWS
    This Programme is for children living with PWS  aged between 0 and 18 years of age. Places on this Programme are allocated on a first-come, first served basis. Each participant must be accompanied by a responsible person/carer whose place will be free of charge; if you do not know the carer’s details at this point, just insert “to be advised”.  A responsible person/carer must remain with the person in their charge for the entire Programme.  Once you have registered a separate form will be emailed to you to collect some further information.
  • Educationalists, Health and Allied Health Professionals: Interdisciplinary 1-day event
    This is a new addition to our International Conference programme and will be of interest to the educational sector, health and allied health professionals who are interested in the holistic treatment and support of people living with PWS. It is an interactive, educational meeting supporting competency development and knowledge sharing.
    If you do not receive a receipt in your Inbox for your registration, check your junk email file and should you encounter any difficulties registering please contact us at conference@ipwso.org.  

Please read and accept the
11th International Prader-Willi Syndrome Conference Organisation Terms and Conditions

For late registration please contact our conference office on: conference@ipwso.org

A professional or student attending the

  • Clinical and Scientific Programme, or
  • Professional Providers and Caregivers Programme
  • and / or the
  • Interdisciplinary Programme
  • Parents Programme

Parents and people living with PWS attending

  • Parents Programme,
  • SUAS – Stepping Up Adults Symposium,
  • Children with PWS Programme,
  • Observer at the Clinical and Scientific Programme or
  • an Observer at the Professional Providers and Caregivers Programme

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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