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  5. 11th IPWSO Conference 2022
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Abstracts

The deadline for abstract submissions has now passed – thank you to everyone who submitted!  Guidelines for Oral and Poster Presentations are detailed below.   

If you wish to discuss any aspect of your abstract submission please email: conference@ipwso.org.

Guidelines for Poster and Oral Presentations

Clinical and Scientific Poster Presentations:

The title, author(s) and place of work should be positioned at the top of the poster.  Diagrams, photographs, and tables may be included.  Each presentation should include a brief explanation of the Aims, Methods, Results, and Conclusions.

Please print your poster in portrait style in size A0 or 33″ x 44″ or 841 mm x 1189 mm.

You have been allocated a number (see here)  which places your poster within the relevant category in the display.  Please fix your poster onto a board in that area, either on Wednesday 6 July from 14.00 until 18.00 or on Thursday 7 July in the morning between 08.00 and 08.30.  Fixings will be provided.

Presentation Times:  Thursday 15.00 to 17.00 and Friday 16.00 to 18.00.

We request that people stand by their posters accordingly: Those with odd numbered abstracts stand by their posters for the first hour and those with even numbered abstracts will stand by their posters for the second hour EXCEPT for Day 1 for the people in the Clinical Trials section who will be attending the Clinical Trials Consortium (CTC).  They instead will stand by their posters for the first hour for Day 1 irrespective of their abstract number.  Day 2 will follow the typical odd/even instructions.

There will also be an opportunity to view posters during the lunchtime breaks on Thursday and Friday, but you are not required to be at your poster during these times. 

You may remove your poster from 18:00 on Friday.  However, you are welcome to leave your poster for viewing by delegates attending the Parents’ programme and the Interdisciplinary programme.  If you wish to retain your poster it is your responsibility to remove it before the end of the conference at 16:00 on Sunday 10 July.  All posters left after this time will be properly disposed of.

For your information: contact details for a local printer in Limerick:

https://www.troymarketing.ie/

info@troymarketing.ie  

Professional Providers and Caregiver Poster Presentations:

The title, author(s) and place of work should be positioned at the top of the poster. Diagrams, photographs, and tables may be included. Each presentation should include a brief explanation of the aims, methods, results, and conclusions.

Please print your poster in portrait style in size A0 or 33″ x 44″or 841mm x 1189mm.

You have been allocated a number (see here) which places your poster within the relevant category in the display. Please fix your poster onto a board in that area, either on Wednesday 6 July from 14.00 until 18.00 or on Thursday 7 July in the morning between 08.00 and 08.30. Fixings will be provided.

Presentation Times

There will also be opportunities to present your poster during the coffee and lunchtime breaks on Thursday and Friday.

You may remove your poster from 18:00 on Friday. However, you are welcome to leave your poster for viewing by delegates attending the Parents’ programme and the Interdisciplinary programme. If you wish to retain your poster it is your responsibility to remove it before the end of the conference at 16:00 on Sunday 10 July. All posters left after this time will be disposed of.

Clinical and Scientific Oral Presentations

Details of your timeslot can be found here. Fifteen minutes will be allotted for each presentation.  We request that your talk be limited to 10-12 minutes in order to leave 3-5 minutes for questions.

Please bring your presentation on a USB drive. You will find the technicians in the Allegro Cafe, University Concert Hall building, at the following times:

Wednesday 6 July – 14:00 – 16:00

Thursday 7 July – 08:00 – 17:00

Friday 8 July – 08:00 – 17:00

Saturday 9 July – 08:00 – 16:00

Sunday 10 July – 08:30 – 16:00

In the interests of time,  you will not be permitted to use your own laptop.

If you have media files as part of a PowerPoint presentation, please make sure that these files are saved in the same folder as the PowerPoint file.

Set your presentation slide size to a widescreen (16:9) aspect ratio

We recommend that you arrive at the venue in good time so your presentation can be tested to make sure it will behave as you expect.

If you are unable to attend (or to send a substitute) to deliver your presentation, please let us know as soon as possible at conference@ipwso.org or telephone: +44 (0) 7494 067314

Professional Providers and Caregivers Oral Presentations

You will be allotted a time slot (see here). Please note you should allow time for questions and answers within this time period.

Please bring your presentation on a USB drive. You will find the technicians in the Allegro Cafe, University Concert Hall building, at the following times:

Wednesday 6 July – 14:00 – 16:00

Thursday 7 July – 08:00 – 17:00

Friday 8 July – 08:00 – 17:00

Saturday 9 July – 08:00 – 16:00

Sunday 10 July – 08:30 – 16:00

In the interests of time,  you will not be permitted to use your own laptop.

If you have media files as part of a PowerPoint presentation, please make sure that these files are saved in the same folder as the PowerPoint file.

Set your presentation slide size to a widescreen (16:9) aspect ratio

We recommend that you arrive at the venue in good time so your presentation can be tested to make sure it will behave as you expect.

If you are unable to attend (or to send a substitute) to deliver your presentation, please let us know as soon as possible at conference@ipwso.org or telephone: +44 (0) 7494 067314

Additional Information:

Podium PCs

·         Each of the Lecture Theatres has a PC with Windows 10 64bit

·         Microsoft Office 365 is installed on all Lecture Theatre PCs

·         Microsoft Edge is available for access to the Internet

·         There is a CD/DVD R/W drive in all the PCs

·         There is also a suite of Media Players installed and should be able to play almost any media file type

·         All the PCs have USB3.0 and USB2 ports.

12 June 2022

 

Clinical and Scientific Programme Guidance

We are now asking for abstracts for presentations to be submitted.   The IPWSO Clinical and Scientific Conference aims to include reports of advances in clinical research in the basic and behavioural sciences and in neurosciences with the aim of advancing our knowledge of Prader-Willi syndrome (PWS) and thereby improving our understanding and developing new treatments for people with PWS.  The conference includes invited speakers from relevant fields of science outside of PWS and is truly interdisciplinary in nature.

Please ensure you follow the Abstract Guidelines; if you have any queries email: conference@ipwso.org.

Desired topics for the Clinical and Scientific Programme include, but are not limited to:

1.  Genetics and Epigenetics 

Examples include:

  • Advances in Genetics in PWS
  • Epigenetics: influences on brain development and behaviour 
  1. Endocrinology (Growth Hormone, Oxytocin, Ghrelin, etc.)

Examples include:

  • Hormonal studies
  • Hypogonadism
  • Recent advances in Endocrinology in Adults with PWS 
  1. Gastrointestinal Issues and Nutrition

Examples include:

  • Comprehensive Overview of Digestive Issues in PWS
  • Chewing, swallowing, reflux and aspiration 
  1. Neuroscience, Mental Health and Behaviour

Examples include:

  • Brain structure and function in people with PWS
  • Approaches to understanding mental health and behaviour (the IPWSO Mental Health Initiative)
  • New findings and treatment approaches to hyperphagia and behaviour 
  1. Recent Advances and New Knowledge in Medical Issues (including Orthopaedics, Urinary Tract etc.)

Examples include:

  • Overview and Evaluation: Infants, Children, Adolescents and Adults with PWS
  • The Orthopaedics of PWS 
  1. Animal Models & Use of Induced Pluripotent Stem Cells in PWS

Examples include:

  • Insights into mood and psychosis in PWS
  • The hypothalamus and its connections
  1. Clinical Trials for Hyperphagia and Behaviour

8. The early PWS phenotype

Examples include:

  • Fetal and placenta development
  • Infancy 
  1. Transition to Adulthood

Examples include:

  • Hormone replacement therapy

Please ensure you follow the Abstract Guidelines.

See a sample Scientific Abstract Format  here.

To start your on-line submission for the Clinical and Scientific Programme, see below.

Professional Providers and Caregivers Programme Guidance

If you are involved in the professional work of caring for children, young people adults, and aging adults with Prader-Willi syndrome, we invite you to please share your vision, successes, challenges, and experiences.  Before you submit your abstract,  please ensure you have read the Abstract Guidelines.

Desired topics include, but are not limited to:

  • Behaviour
    Behaviour plays a central role in the social context. In people with Prader-Willi syndrome, unexpected behaviours are often a major challenge for parents and professional caregivers. How can we respond to these unexpected and challenging behaviours so that people with Prader-Willi syndrome can learn to control their behaviour, so they are best equipped to participate in their social environment?For this, it is necessary to identify the motivation underlying the individual behaviour and which models and methods are suitable and have been proven to support this goal. One key to success lies in the intensive collaboration among the various disciplines such as pedagogues, social workers, educators, psychologists, psychiatrists, doctors, endocrinologists, geneticists and researchers on Prader-Willi syndrome, other therapists and last but not least, the parents.
  • Restrictive Practices: the ways in which restrictive practices relate to the professional care of people with PWS.
    Suggested topics include case studies, proposed models of restrictive practice for people with PWS, or academic research into restrictive practices used to manage PWS.
  • Social Media
    Social media has become an important part of daily life. Through social media individuals can stay connected to their community, friends, and family. There is also an increased risk for abuse and exploitation. Education for those with PWS and their caregivers can help to minimize the risk and allow for safe and enjoyable participation in social media.
  • Wellbeing
    What we think of as wellbeing in the general population can look very different for people with PWS. The environment might include accepted restrictions for the individual’s health and safety which will help them to flourish. Allowing for individual choice, providing social opportunities, and recognising the particular strengths of people with PWS and the positive nature of what they contribute, can help to ensure personal wellbeing.

    To start your abstract submission for the Professional Providers and Caregivers Programme see below. 
Clinical and Scientific
Programme
Professional Providers and Caregivers Programme

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