We are now pleased to invite abstracts for oral and poster presentations for two Progammes at our IPWSO 2022 Conference – the Clinical and Scientific Programme and the Professional Providers and Caregivers Programme.
The IPWSO Clinical and Scientific Programme aims to include reports of advances in clinical research in the basic and behavioural sciences and in neurosciences with the aim of advancing our knowledge of Prader-Willi syndrome (PWS) and thereby improving our understanding and developing new treatments for people with PWS. The Programme includes invited speakers from relevant fields of science outside of PWS and is truly interdisciplinary in nature.
The Professional Provides and Caregivers Programme is seeking abstracts from those whose work involves caring for children, young people, adults, and aging adults with Prader-Willi syndrome; please come along and share your vision, successes, challenges, and experiences at IPWSO 2022.
- October 2021 Call for abstracts and travel fellowship announcement
- 5 February 2022 Closing date to receive abstracts
- 15 March 2022 Notification of acceptance of abstracts
- 7 April 2022 Early bird registration closes
Clinical and Scientific Programme Guidance
We are now asking for abstracts for presentations to be submitted. The IPWSO Clinical and Scientific Conference aims to include reports of advances in clinical research in the basic and behavioural sciences and in neurosciences with the aim of advancing our knowledge of Prader-Willi syndrome (PWS) and thereby improving our understanding and developing new treatments for people with PWS. The conference includes invited speakers from relevant fields of science outside of PWS and is truly interdisciplinary in nature.
Desired topics for the Clinical and Scientific Programme include, but are not limited to:
1. Genetics and Epigenetics
- Advances in Genetics in PWS
- Epigenetics: influences on brain development and behaviour
- Endocrinology (Growth Hormone, Oxytocin, Ghrelin, etc.)
- Hormonal studies
- Recent advances in Endocrinology in Adults with PWS
- Gastrointestinal Issues and Nutrition
- Comprehensive Overview of Digestive Issues in PWS
- Chewing, swallowing, reflux and aspiration
- Neuroscience, Mental Health and Behaviour
- Brain structure and function in people with PWS
- Approaches to understanding mental health and behaviour (the IPWSO Mental Health Initiative)
- New findings and treatment approaches to hyperphagia and behaviour
- Recent Advances and New Knowledge in Medical Issues (including Orthopaedics, Urinary Tract etc.)
- Overview and Evaluation: Infants, Children, Adolescents and Adults with PWS
- The Orthopaedics of PWS
- Animal Models & Use of Induced Pluripotent Stem Cells in PWS
- Insights into mood and psychosis in PWS
- The hypothalamus and its connections
- Clinical Trials for Hyperphagia and Behaviour
8. The early PWS phenotype
- Fetal and placenta development
- Transition to Adulthood
- Hormone replacement therapy
Please ensure you follow the Abstract Guidelines.
See a sample Scientific Abstract Format here.
To start your on-line submission for the Clinical and Scientific Programme, see below.
Professional Providers and Caregivers Programme Guidance
If you are involved in the professional work of caring for children, young people adults, and aging adults with Prader-Willi syndrome, we invite you to please share your vision, successes, challenges, and experiences. Before you submit your abstract, please ensure you have read the Abstract Guidelines.
Desired topics include, but are not limited to:
Behaviour plays a central role in the social context. In people with Prader-Willi syndrome, unexpected behaviours are often a major challenge for parents and professional caregivers. How can we respond to these unexpected and challenging behaviours so that people with Prader-Willi syndrome can learn to control their behaviour, so they are best equipped to participate in their social environment?For this, it is necessary to identify the motivation underlying the individual behaviour and which models and methods are suitable and have been proven to support this goal. One key to success lies in the intensive collaboration among the various disciplines such as pedagogues, social workers, educators, psychologists, psychiatrists, doctors, endocrinologists, geneticists and researchers on Prader-Willi syndrome, other therapists and last but not least, the parents.
- Restrictive Practices: the ways in which restrictive practices relate to the professional care of people with PWS.
Suggested topics include case studies, proposed models of restrictive practice for people with PWS, or academic research into restrictive practices used to manage PWS.
- Social Media
Social media has become an important part of daily life. Through social media individuals can stay connected to their community, friends, and family. There is also an increased risk for abuse and exploitation. Education for those with PWS and their caregivers can help to minimize the risk and allow for safe and enjoyable participation in social media.
What we think of as wellbeing in the general population can look very different for people with PWS. The environment might include accepted restrictions for the individual’s health and safety which will help them to flourish. Allowing for individual choice, providing social opportunities, and recognising the particular strengths of people with PWS and the positive nature of what they contribute, can help to ensure personal wellbeing.
To start your abstract submission for the Professional Providers and Caregivers Programme see below.
Clinical and Scientific
Professional Providers and Caregivers Programme
Guidelines for all Oral and Poster Presentations
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.