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  6.  » About the IPWSO Leadership ECHO® Programme

The IPWSO Leadership ECHO® Programme

The Leadership ECHO® programme explores how we can make changes in our respective countries and influence governments so that the necessary services and supports are put in place for the benefits of people with PWS.

The goal of the IPWSO Leadership ECHO programme is to bring together people who are active in existing associations and others who are starting on the journey to establish groups or associations within their country. We believe that strong national PWS bodies can play an important role in collectively working to solve problems and can help to address disparities in services and supports, for the benefit of people with PWS, their families and carers.

Benefits of joining the IPWSO ECHO leadership community:

  • Supporting you in your ambition to improve care and life opportunities for families and individuals with PWS in your country, whether you are an individual or a national PWS Association.
  • Increasing your knowledge and understanding of PWS and sharing international best practice, latest research, resources and guidance.
  • Facilitating your access to PWS communities across the globe.
  • Creating a united global voice, empowering you to help to reduce disparities in the management, treatment, and provision of services for people with PWS in your country.

Join the IPWSO Leadership ECHO® Programme

Is your country represented? This Leadership ECHO® is only as good as the sum of its parts and your nation’s contribution is vital. Who can attend the IPWSO Leadership ECHO®?

The programme will be of interest to:

  • people who are active in existing PWS associations
  • people who are interested in developing PWS associations – parents and professionals


  • Next session: 5 October 2021. 10am UK time
  • Dates: 2 November, 30 November, 11 January and 1 February
  • Duration: 10 sessions each lasting 90 minutes
  • Attendance: Free for all participants
  • Methodology:  All teach–All learn

Sessions will include short and focused presentations, discussions and opportunities for participants to present on the challenges they face in their respective countries.

We'd like to hear from you

Contact us with your stories, comments and suggestions for our IPWSO Leadership ECHO® programme.
Send your blogs, videos, text and images so we can share and inspire others!

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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