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Upcoming Events

We host a major international conference every three years in cooperation with one of our national association members. We also provide speakers and support for other smaller conferences and workshops throughout the year and around the world. If you are planning an event and would like us to get involved then please let us know.

Join us at the 11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland

We can’t wait to see you at our 11th international conference! 

Join IPWSO and our local hosts the Prader-Willi Syndrome Association Ireland (PWSAI) to learn about the latest developments and research in the understanding of Prader-Willi syndrome and meet other families, physicians, researchers and caregivers from around the world.


The format will include parallel sessions for:

  • Researchers and clinicians
  • Allied health and educational professionals
  • Care providers
  • Adults with PWS
  • Families


  • Activities for children with PWS
  • A special meeting of the IPWSO association members

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

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