|
Second Announcement (March 2010)
Draft Programmes
All programmes are yet to be finalised and, as such, information on this page is subject to change without notice.
Scientific Programme, Thursday 20 - Friday 21st May
Programme
Oral Presentations
Poster Presentations
· General (Parent & Professional) Programme, Friday 21 - Sunday 23 May:
Speakers are to be confirmed, but topics are:
Friday:
Opening & Welcome
Pam Eisen Memorial talk
BIRD and IPWSO's roles in diagnosis
Cargiver's Conference Overview
Medical Overview
What it means to know the diagnosis (talks by 2 parents)
Role of Genetics in understanding the syndrome
Role of Research - is there a cure?
Saturday:
Health Issues through lifespan
Nutrition & Supplements: how many calories and how do you know?
Exercise and fitness through lifespan
Endocrinology (GHT, gastro, osteo, adrenal insufficiency)
Parent reflection: how GHT changed my child's life
Puberty: sex hormone therapy, reproduction, parenthood in PWS
Sleep disturbances in PWS
Temper tantrums
Food Security
Prevention & predictability in behavioural changes
Saturday afternoon at 4pm there is a planned Tour followed by the Gala Dinner. The Tour is of the Lin Family Gardens "This Lin Family Residence at Panchiao has been built and restored by Lin Ping Chong Jian Yuqing Hou Tao-kuang for wenty-seven years (de 1847), and his son in the subsequent four decades, and gradually build built to today's overall appearance. The Lin's Family Residence at Panchiao is made from China and Taiwan's senior camphor wood, and has been designed and built by professional craftsmen. The park, with its small bridges, green, delicate pavilion and show gardens is superb, full of beautiful scenery. After the tour, you will experience a pleasant old-fashioned.Gala Dinner."
Sunday:
Psychotropic medications
Education and transition into the community
1.30pm Extraordinary General Meeting
3.00 pm General Assembly
Caregivers' Conference:
The full programme can be seen here
|